Christina Kosyla

Patient and DTRF Advocate

Christina Kosyla is an educator, theatre artist, and accidental rare disease advocate. Since her diagnosis with a desmoid tumor in 2018, she has raised over $32,000 for the Desmoid Tumor Research Foundation. She chronicles her treatment on her blog and instagram account and has been interviewed for features in both local and national media publications. Christina lives in New Jersey with her dog, Daisy.