Desmoid tumors are extremely rare. We’ve heard many times that our annual events provide opportunities for patients to feel that they’re not battling this disease alone. We’ve heard patients say that our events were the first time they’d ever met someone else who truly “gets it”.
Join us virtually on Zoom for this 90-minute networking event, which will be produced in partnership with the following desmoid tumor patient advocacy organizations: Sachin Sarcoma Society (in India), Desmoide Brasil (Brazil) and Contactgroep Desmoid (Netherlands). Facilitators, including American desmoid survivor, F.A.P. survivor, and patient advocate, Dakota Fisher-Vance, will guide the discussion and provide breakout groups based on language and location. This is also a chance to connect personally, one-on-one, with other patients and care partners.
Learn more about other Together We Will Virtual Weekend events at dtrf.org/weekend.