Together We Will Empower Ourselves

DTRF Annual Patient Meeting Webinars 1 & 2

Saturday, September 25

11:00am ET & 1:30pm ET


Founded in 2007, the DTRF Annual Patient Meeting is the Foundation’s signature patient support event. Now in a virtual format for the second year, the Meeting connects the community with valuable, cutting-edge research and treatment information for desmoid tumor patients, wherever they are.

Patients and caregivers are invited to join us for TWO back-to-back 90 minute webinars where distinguished physicians and researchers, as well as patients, will present on key topics related to desmoid tumors. Attendees can participate in real-time Q&A.

While all Weekend events are free, we do strongly encourage all participants to fundraise for desmoid tumor research by taking the RFA Virtual Challenge our summer-long fundraising event. When you register for the Patient Meeting Webinars, you will automatically receive your own RFA Virtual Challenge online fundraising page to claim, customize, and share. Thank you for bringing us one step closer to a cure!

Event Details

Patient Meeting Webinar #1 (via Zoom)

Saturday, Sept. 25
11:00am- 12:30pm EDT (90 minutes)

5:00 CEST | 10:00am CDT | 9:00am MDT | 8:00am PDT | Time zone converter

Featured topics:

  • An Overview of Medical Desmoid Tumor Treatments with Dr. Bernd Kasper (Ghent University, Belgium)
  • Cryoablation with Dr. Afshin Gangi (University Hospital Strasbourg, France)
  • Ayala Pharmaceuticals’ RINGSIDE Phase 2/3 Clinical Trial for Desmoid Tumors using AL102 (a gamma-secretase inhibitor) with Dr. Gary Gordon (Ayala Pharmaceuticals)
  • The International Pregnancy Study with Marianna Coppola (Desmoid Foundation of Italy) & Dr. Chandrajit Raut (Dana Farber Cancer Institute)
Patient Meeting Webinar #2 (via Zoom)

Saturday, Sept. 25
1:30- 3:00pm EDT (90 minutes)
7:30pm CEST | 12:30am CDT | 11:30am MDT | 10:30am PDT | Time zone converter

Featured topics (TBA)