Together We Will Advance Research

7th Annual DTRF Int’l Desmoid Tumor Research Workshop (Virtual via Zoom)

Friday, September 25th at 11am EDT
5pm CEST | 10am CDT | 9am MDT | 8am PDT  time zone converter

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The DTRF International Research Workshop features:
  • A forum to share research findings, develop new collaborations, bring new scientists into the research field, and work together on new innovations that will lead to new treatments
  • Pre-recorded scientific talks on current research that attendees are encouraged to watch in advance of the meeting
  • Live questions and discussions relating to the scientific talks
  • Group discussions focusing on gaps in desmoid tumor science and how best to address them through high impact collaborative research

Why should you join us?
  • You’ll be brought up to date on desmoid tumor research and treatment advances
  • You’ll play a key role in helping prioritize areas where DTRF should be directing resources and activities in the future
  • You’ll be a part of the momentum that propels the field forward
  • You’ll develop collaborations with a diverse group of scientists and the brightest minds in desmoid tumor research and treatment
Our distinguished presenters

Associate Professor of Pediatrics, Maine Medical Center (Chair, DTRF Medical Advisory Board)

PhD candidate, Surgical Oncology, Erasmus Medical Center Cancer Institute

Professor & Chair, Orthopaedic Surgery, Duke University

Associate Professor, University of Colorado Anschutz Medical Campus

Associate Professor at the Keck School of Medicine and Medical Director of Clinical Research Support Office for the Cancer and Blood Disease Institute at Children’s Hospital Los Angeles

Assistant Professor, Department of Pathology, Stanford University School of Medicine

Sarcoma Medical Oncology; Medical Director, Clinical & Research Informatics, James Cancer Hospital, The Ohio State University

The Desmoid Tumor Research Foundation

Scientific Director, Cancer Dependency Map, The Broad Institute of MIT and Harvard

Instructor, Department of Pathology, Stanford University

Adjunct Associate, Duke University and Medical Science Liaison, Jazz Pharmaceuticals, Inc.

Professor of Developmental Biology, Ghent University

Osteopathic Board of Oncology, University of Michigan- Rogel Cancer Center

Desmoid Tumor Survivor & Patient Advocate

Head, Molecular and Systems Oncology Laboratory, Division of Molecular Pathology, The Institute of Cancer Research

Medical Oncologist, All India Institute of Medical Sciences

Event Presentations
  • Benjamin Alman, MD, Professor & Chair, Orthopaedic Surgery, Duke University.
  • Fariba Navid, MD, Associate Professor at the Keck School of Medicine and Medical Director of Clinical Research Support Office for the Cancer and Blood Disease Institute at Children’s Hospital Los Angeles, Pediatric nirogacestat trial.
  • Kris Vleminckx, PhD, Professor of Developmental Biology, Ghent University, “Identifying and characterizing dependency factors in a genetic Xenopus tropicalis desmoid tumor model.”
  • Jesse Boehm, PhD, Scientific Director of the Cancer Dependency Map, Associate Director of the Cancer Program, Director of the Broad Cancer Model Development Center, The Broad Institute of MIT and Harvard, “The Desmoid Tumor Dependency Map.”
  • James Chen, MD, Associate Professor, Sarcoma Medical Oncology; Medical Director, Clinical and Research Informatics, James Cancer Hospital, The Ohio State University, “The role of the tumor microenvironment in S45F desmoid tumor chemotherapeutic resistance.”
  • Paul Huang, PhD, Head, Molecular and Systems Oncology Laboratory, Division of Molecular Pathology, The Institute of Cancer Research, “Deconstructing the desmoid tumour matrisome.”
  • Larry Baker, DO, Osteopathic Board of Oncology, University of Michigan- Rogel Cancer Center, “The necessity for rigour in rare disease study design.”
  • Joanna Przybyl, PhD, Instructor, Department of Pathology, Stanford University, “Genome-wide DNA methylation profiling of desmoid tumors.”
  • Aaron Weiss, DO, Associate Professor of Pediatrics, Maine Medical Center (Chair, DTRF Medical Advisory Board), “The DTRF Virtual Tumor Board.”
  • Kelly Mercier, PhD, Adjunct Associate, Duke University; Medical Science Liaison, Jazz Pharmaceuticals, Inc., “Stable isotope resolved metabolomics to interrogate the interactions between stroma and desmoid tumors.”
  • Kelly Mercier, PhD, Adjunct Associate, Duke University; Medical Science Liaison, Jazz Pharmaceuticals, Inc., “The DTRF Patient Registry.”
  • Breelyn A. Wilky, MD, Associate Professor, University of Colorado Anschutz Medical Campus, Final data on “Correlation of CTNNB1 mutation status with chemotherapy response by MRI in patients with desmoid tumors.”
  • Sameer Rastogi, MD, Medical Oncologist, All India Institute of Medical Sciences, “Single institutional data of desmoid tumors/ aggressive fibromatosis- Indian perspective and challenges.”
  • Gerlinde Wernig, MD, Assistant Professor, Department of Pathology, Stanford University School of Medicine, “c-Jun-inducible mice, to study the pathomechanism of desmoid-type fibromatosis in vivo with particular attention to the role of b-catenin/wnt and Notch pathways.”
  • Anne-Rose W Schut, MD, PhD candidate, Surgical Oncology, Erasmus Medical Center Cancer Institute, “The mechanism of action of Sorafenib in desmoid-type fibromatosis.”